EEA MEMBERS’ STORIES PAGE
This is a page where we share stories, anecdotes, comments and special moments with our members. If you have a story to share connect with us at info@edmontonepilepsy.org. Scroll through the stories on this page. We invite you to learn from the sharing, share the link to the page and help us build a positive ATTITUDE OF GRATITUDE, on our journey with epilepsy.
SERVING AS A DIRECTOR OF THE EEA BOARD
Katrina Breau served six years as a Director of the EEA Board, and for the past two years she also was the EEA Vice-President. As a person who lives with epilepsy, she tells us a bit about her story and her message of hope.
EMBRACE EVERYTHING YOU CAN DO!
Listen to an interview with James Bourque, EEA member and a person who has lived with epilepsy since his teenage years. His words of hope and strength will encourage everyone who lives with epilepsy to be their best, in every way possible. Listen to the audio file below. Click here for the transcript file (pdf).
SHANDEA AND KELIAH
Shandea and her daughter, Keliah, recently joined our association and have already become not only an integral part of our community, but actively participate, promote and support many EEA initiatives in different ways. Shandea joined the Board of Directors of the EEA and Keliah is helping us add to the Epilepsy Kids’ Website. Listen to their story as Shandea interviews her daughter about living with epilepsy.
FACING CHALLENGES TOGETHER: BLAKE AND JOELLE’S STORY
Recently we sat down with Joelle and her son Blake, for a conversation about her life journey with epilepsy. Blake has Dravet Syndrome. They have been members of the EEA for a very long time, and we invite you all to listen to the interview and be touched by their openness to share challenges and successes and reflections on how they embrace life together.
TAMMY’S STORY
Tammy is an EEA Director, who recently moved from Manitoba. Listen to her story and her journey with epilepsy. She acquired this brain condition as a result of an injury at work. Her message of hope is to never let the condition own you or limit you in what you want to do. Tammy’s favourite “go to” song for inspiration is “Don’t Look Back” by BOSTON (click here for lyrics).
JASON AND HIS PASSION FOR PEOPLE
Jason is a long-time member of the EEA. He has lived with epilepsy almost all his life. And yet you will be pressed to find a happier person around, one who cherishes life, loves sports, people and being the ‘star’ in his community. Listen to our interview with Jason which took place back in in March 2022.
EMMA AND ALEXIS
Emma is Alexis’ mom. They are both members of the EEA and Emma is here to share their story. Alexis, was born in 1978 with multiple disabilities, including blindness, an intractable seizure disorder and spastic quadriplegia.
Emma shared her story with the EEA in an audio interview you can listen to here. A portion of this interview is published in the EEA newsletter, November-December 2021 issue.
She also wrote a book about life with her daughter. Your can read more about her book, entitled: ‘ …and along came Alexis” at this pdf link here. Emma also has a recording from a reading of her book at this link.
MICHAEL’S STORY
Michael has lived with epilepsy since he was a young child. He shares in his story, how as a young child he did not follow through the medication prescribed for managing his seizures. His message to everyone is to listen to your specialist, and make the best of your life with epilepsy.
Listen to his story below. A portion of his interview is published in the EEA newsletter, November-December 2021 issue.
Michael, as an artist, created a special YouTube video about epilepsy, which you can enjoy by clicking on this link.